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About excentric

I love sci-fi, music, reading, gardening. I am ill, but I am not my illness. Life is good. BTW, have I mentioned that I am a fan girl. Because I Am A FanGirl. Torchwood!

>Autumn

>I love Autumn. I do. Day before yesterday was a perfect Autumn day. Clear, cool, blue sky, beautiful. Just perfect.

Update on the fibro life…..after the good day I had last week, I had not-good days up until Tuesday, the perfect Autumn day. I had a very good day Tuesday, then not so much yesterday, and a pretty good day today. I don’t know what makes the difference.

Saturday, even though I wasn’t feeling great, I managed to get it together enough to go to a friend’s house and do some pc fixing and cleaning and just making things less annoying. I got a great free dinner for my trouble, cooked by my friend, who is a great cook, and I didn’t even have to clean up after. Her hubbies helped with that. Which was good, because by then I was totally exhausted. But her pc is working much better, and I got AOL to stop hijacking everything. I hate AOL. I’m sorry, but I do. I am so glad I never got sucked in to downloading it. She spent more time getting it out of her way than using the computer for things she wanted to do.

Hoping to get my Torchwood Season One DVD’s tomorrow. I already have seasons two and three. I plan to watch them one after the other on one of my ‘can’t do anything so may as well watch tv’ days. There are a lot of those with fibro/chronic fatigue, believe me. And tv…..the actual broadcast tv, is really terrible. It’s a lot like AOL…..many, many interruptions so you can’t watch the show you want to watch. Commercials have grown exponentially the past several years, making the whole tv experience one big annoyance. And they wonder why they are losing viewers. Between commercials and those horrible screen-covering popups and logos, why even bother.

Speaking of Torchwood, if they do happen to make a season four, I’m not sure I will watch it. It seems Russell Davies is killing off people just so he can get Jack and Gwen together. I’m expecting Rhys to die if there is a season four. When you watch them without a week between eps, you really get to see what a peach Gwen really is. She lies continually to Rhys and Andy, she uses Andy whenever possible to get what she wants. She is really not a very nice person, I think. And I’m still really, really angry about Ianto. So there!

>It was a good day

>In spite of not sleeping well because of leg pain and restless legs acting up, I was up at 9am. but the best part is that I ate well all day. Started with coffee, then oatmeal. Lunch was a Kashi frozen lasagna-type thing, then I had fage with a bit of maple syrup for snack, scrambled eggs with cheese for dinner, and now I’m having some whole grain toast. Oh, and I had a root beer float after lunch. I don’t usually eat this much in a day, but what I do eat is not as healthy, so I am pleased.

Tonight I watched ‘Live Free or Die Hard’, an impossible-to-believe movie in which any normal person would have been dead after the first half hour, but hey, it’s Bruce. I only watched it cause it has Justin Long, who I like. He used to be on Ed, and I remember thinking he was going to be a big deal. He held his own with Mr. Willis, I thought. He was great in ‘Galaxy Quest’, too, even though his role wasn’t that big. I love that movie and watch whenever it’s on. Even with commercials.

Tomorrow is tech support day. I’m going to my friend Tess’s house to work on her pc. That will be fun. We do tend to get hysterical with laughter a lot.

Hoping for a good night with actual sleeping going on. I’ll let you know.

>It’s feeling very autumnish. My favorite season. I am better today. Yesterday I was very, very tired and fell asleep on the couch in the afternoon. But my new homemaker came yesterday, and she is fantastic. I really like her and she does a very good job of cleaning.

Last night I had an ‘I need my tech person’ call from my friend Tess. She inadvertently downloaded a baaad fake Windows Defender look alike and it sort of high-jacked her pc. Couldn’t really help over the phone, so over to her house for awhile trying to fix it. She has AOL. NEVER use AOL. That is the true pc hijacker. It would not allow us to do anything. It just kept on popping up and getting in the way. What a nuisance that program is. Anyway, finally had her just shut it all down, disconnect from the modem and unplug. She is busy today and tomorrow, but Friday we will try to use the fix we found when we googled back here at my house. The moral is….never click on a popup unless you are absolutely positive you know what it is. It looked like Defender and she thought it was an update, so ran it. Oops.

I also am going to try using gmail to import her aol mail so she can then delete it forever…..AOL, not her mail. *grin*. I really enjoy fiddling with things on the pc and trying to fix, make it work, whatever. I like to download new things to try, too.

Did not sleep well because in spite of two ibuprofen, my legs hurt all night. Just a little fibro update here, folks.

>More with the fibro

>I am feeling lousy again. Could sleep all the time if I let myself. But today the new homemaker starts, so I am up and showered. I had a bowl of grapenuts and immediately felt worse, which doesn’t usually happen, IIRC, so not sure what that’s about. It’s lovely weather, though. There’s always something positive going on, isn’t there? Off to get dressed. Sloowly.

>Autumn Begins

>
A few trees are beginning to turn, the weather has gotten much nicer….cooler and less humid. I am feeling much better, too. Every day without sugar-free ice cream has me feeling better than the day before. Very interesting. The picture is the John Greenleaf Whittier house near Haverhill, MASS. It’s by J. Woodhull Adams. I’ve been by the actual house hundreds of times, since it wasn’t that far from where I lived in New Hampshire. It really does look just like that. The main road goes up on the near side of the house, and there is a smaller road that goes by the front.

I just found out I lost another homemaker, due to agency not providing her enough hours. Her sister is taking over for her. This is one of the most difficult parts of being ill, the constant changing of the homemaker. Some are great, some okay, some not so good, and it’s the good ones who seem to last the shortest amount of time. It’s a crap job anyway, doing other people’s laundry, cleaning other people’s bathrooms, grocery shopping which is not fun even when you’re doing it for your own family. They really aren’t paid very well, either, so it’s amazing anyone even chooses the job in the first place. I think it’s a ‘not enough skills or education for a better job’ kind of thing. But it would be nice to have the same person, if she’s a good cleaner, all the time. Starting over with someone new is hard, especially because of the nature of what they do for me. “Here’s my dirty laundry, new person. Deal with it.” I really hate that. You know how they say, “Be careful what you wish for?” I always wished someone else would clean the toilet, my least favorite job. Well, now someone does, but I am in pain and too fatigued to function and my brain doesn’t work well and my life has gotten more and more insulated and my world has shrunken…….but someone else cleans the toilet. A fair trade-off? I don’t think so. So that wishing thing is really a catch-22 kind of deal. A dirty trick the cosmos plays on you. Oh, well.

>Artificial Sweetener Update

>No ice cream for two days, and woke up this am feeling much better. Much less pain, and not as fatigued, although I did need a long nap. Very long. Almost four hours. But I was able to shower and get dressed, get some work done in the kitchen and went down to get my mail. I’m debating waiting another day or so and then trying the ice cream again to see if that really was the problem. It’s really hard sometimes to figure out what causes flares. Is it a change in the weather, a food, what? I’m not good at keeping track of everything I do, or eat, or the weather. I suppose if I did, I would be able to see patterns, but it’s just that much more to be responsible for when I’m not up for doing much of anything anyway. It’s never simple, is it?

>Fake Sugar and Fibro

>I don’t normally eat anything with artificial sweeteners, but my homemaker bought sugar-free ice cream a couple of weeks aga, and it was hot weather, and……I ate it. Didn’t seem to bother me, so I had her get me some more. I’ve had ice cream every day for about three weeks. Root Beer floats, cones, with fruit, plain. And I have gradually been getting worse and worse. Pain, complete lack of energy, more pain, til I am pretty much non-functioning at the moment. Sleeping a lot more than usual, too.

So I’m wondering if anyone else has any experience with this. Do any of you avoid artificial sweeteners? Have any of you had a bad reaction? Are there any other foods you avoid because they cause fibro flares? Let’s share the information, shall we? None of us is enjoying this illness, I’m sure. Maybe we can figure out better ways of dealing with it if we work together. I’m hopin’.

>Oy!

>Remember this? It is gone, gone, gone. I told the a/c guy that once it was fixed, I wouldn’t need it, and was I ever right. It is gray, raining, and 64 degrees. Sweater, blanket, warmer jammies, hot coffee. Root beer floats? No way. It’s interesting how everything is relative, isn’t it? In winter, 64 degrees would be a heat wave. In August, it’s freezing weather. It’s been a really unusual summer. I’m wondering what the winter is going to be like. I’ll let you know, readers.

>Uh Oh

>I have become obsessed with Torchwood, Jack and Ianto, specifically. This is not a new thing. Herein I list my obsessions over the years. First was Lister. Dave Lister, from Red Dwarf. “They’re dead Dave. They’re all dead Dave. Dave, they are all dead. They. are. all. dead. Dave” I love that stuff.

Then there was Johnny Depp in Benny and Joon, my all-time favorite movie.

Next was Crichton, (Ben Browder) from Farscape, the best scifi show ever.

Next was Second Ray (Callum Keith Rennie) from Due South. Love that show. Bought the DVDs.

Wait, there’s more.

I kind of like Wash (Alan Tudyk), from Firefly. DD#1 likes Adam Baldwin, cause she knows him personally. Jealousy alert!

Then there’s this guy, Bae Yong Joon (no relation to Joon of Benny and..)from the Korean soap opera, Winter Sonata. I used to get the Asian channel, and the music from this sucked me right in. Bought the DVDs used off of Amazon.

Okay, who else?
Right. Next is the late great Heath Ledger from Brokeback Mountain. Again with the music sucking me in from the trailer. Stupid boy to be dead. Made me angry.

Can’t forget the Second ever Ninja Warrior champ, Makoto Nagano. I like Ninja Warrior. Those guys are crazy.

Next to last, a couple quick shout-outs to an oldie but a goodie, Clark Johnson from Homicide–Life on The Streets. One of the best non-scifi tv shows ever.

AND

Another to Richard Armitage, the gorgeous soft-spoken actor from Robin Hood and The Vicar of Dibley, the funniest show ever on tv.

And finally———–Jack and Ianto (John Barrowman and Gareth David Lloyd), courtesy of Torchwood, the Doctor Who spin-off. I refrained from posting any R-rated, so my DDs won’t feel quite as much need to put me away somewhere. But I could. Oh yes I could.

That’s our gorgeous men ration for today. Got any of your own? We have comments here, you know. Feel free to point out any I may have let get past me. Obsessing. It’s a good thing.

>Hooray!

>The lovely, lovely air-condition repairman came today and fixed the darn thing. It needed a new part. The old one was thirty years old, he said. It is an old building I live in. Anyway, all is now cool and much, much dryer. All of us…..me, the super, and the repair man agreed that we do not like humidity and will never move to Florida, like so many people we know do. LOL

Had a good day so far. Had to move the bed so make easier access to the a/c system in the closet, so kind of rearranged the bedroom, and my homemaker helped me cover the mattress and do some other things in there. I also had to take stuff out of the closet and then put it back after a/c guy left. Not fun when you are trying to work in soup. The putting back was in much more comfortable circumstances, though.

I found another translate gadget, so added it. Tried to get an ’email me’ gadget, but it didn’t work. It’s supposed to scramble your email so spambots can’t grab it, but no. Oh, well.

>Translations, Anyone?

>Just came across this great translation tool which is in the sidebar. I got the picture from here: http://www.flickr.com/photos/mdid/

I love gadgets and gizmos and playing around with things. This one is pretty neat, because not only does it give non-English speakers a chance to read your blog, it could also help you learn another language by seeing what you wrote in that language. Pretty good, I think.

Another sticky day, and I woke up to find that my a/c had a glitch and is not working. Of course it is Saturday, so I can’t really call the super til Monday. If they send out a repairman on the weekend, I can imagine the cost, and the more costs, the more rent will go up, me thinks. The windows are still closed and I have a fan on, so it is bearable. Besides, Bill is going by soon and will maybe clear this weather pattern right out of here. I hope.

Happy Translating, everyone.

Which reminds me of a ‘DUH!’ moment. Awhile back, I was all excited that I had a visitor from Finland. Next day I remembered I had commented on this blog:

http://moonlit-puutarha.blogspot.com/

which is Finland based. I assume he was checking my blog. This gardener posts lovely, lovely pictures, so check it out.

>Hot

>and Sticky. Too hot and sticky to do much of anything except emulate the cat in the picture. But yesterday I went to Whole Foods with a friend. Haven’t been in a long time. Got some really lovely fruit….figs, apricots, plums, and more. Just one or two of each. Also got an heirloom tomato, which was tasty but not spectacular. Today I made caprese salad….tomatoes, mozzarella, fresh basil from my Aerogarden, extra virgin olive oil, wine vinegar, s&p. MMMMM. Very nice.

Lots of pain still, but I am managing. I’ve also been bitten in several unrelated places by I have no idea what. I don’t think it’s mosquito, and I haven’t seen anything flying, crawling, hopping or otherwise. It’s always something, right?

Watching a bio of the late, really great Janis Joplin. What is it that the great ones are usually so troubled? We,(me), the great untalented, seem to get through life reasonably well. Creativity takes something from you, or maybe is caused by a lack, or a glitch in the brain. Whatever. She was one hell of a singer, and I was sad when she died. I had all her albums, too. Unfortunately, when husband moved out, he took all the records with him. I have replaced some with cd’s though, over time. I like music of all kinds, with the notable exceptions of most jazz and all country-western. I like western music, just not when it has country attached. LOL

Time for some water, people. Be sure to keep hydrated in the heat, especially if you are ill.

>Could not resist

>

posting this picture. It’s from a great site I just came across:

http://punditkitchen.com/

Hope you all enjoy it as much as I do. There is some great stuff in there.

Ah, wait. Here’s another one. Yes, I do use a Windows pc, not a Mac.

>Funny Stuff

>
Oh, yeah. Came across picture, which so goes with this: (click on picture if you can’t read it)

http://www.youtube.com/watch?v=Sv5iEK-IEzw

>Update

>I updated my blog roll. Yes, I know there are not a lot of fibro/cfs blogs listed, but I am interested in more than my illness, and I hope you are, too. Blogs on any and every subject are out there, and especially if you have mobility issues, you can be connected and entertained and educated and laugh, laugh, laugh, just with your internet connection. It’s a good thing, and yes, I know I stole that from Martha, but I’ll bet she doesn’t really care.

>It’s been a good day.

>I was able to get out with a friend and do a bit of shopping and browsing, had a coolatta and played Big Kahuna on here. I can tell I will not be able to do more than hobble once I have been still for awhile, but having fun is so worth it. Pain and fatigue as a result of doing something fun is so much easier to deal with than pain and fatigue that just happen for no known reason. I know what I’ve done to cause the former, and was willing to make the trade-off. It makes a difference. It is very cool and spit rain off and on, and the air is really, really damp.

We went to Walmart, which is in the process of building more in order to become a super Walmart with groceries and all. It was awful. Why would you choose to walk what seems like miles from one end of a store to the other just to find the few things you might need. It is stale recirculated air, too. Very unpleasant to be in. I am not one who thinks bigger is necessarily better, or that one-stop shopping is a good thing. Friend and I agreed that we will go only when we have something specific to get. No more browsing for the fun of it. Huge, cavernous stores are not really all that appealing.

>Twitter

>
Does anyone? I don’t. But I just read something about searching yourself on google, so I did a search for strangely peculiar, which I have been using since 1995 btw, and discovered I have been twittered.

http://tweetmeme.com/story/138109786/strangely-peculiar-something-has-changed

Should I be excited, flattered, disturbed? It means my blog is being read more than I thought, which is a good thing, but it also means I should probably step it up and get serious about blogging for people with fibro/cfs. Or should I? Should I just keep it on a more personal note, should I try to become a ‘real’ blogger, or should I just get over myself? Opinions, anyone.

I am feeling much better today, btw. Coincidentally, it is much cooler today, although the humidity is still pretty high. So maybe it really IS the heat, not the humidity. I don’t know anymore. I’m just happy to feel better and be out of the funk and the pain I was in for the past couple of weeks. Life is good.

>Feeling Better

>

I guess I’m lucky that the depression doesn’t last very long. Thank you meds. I’ve been in the black hole, and I do not ever want to get that far down again.

These pictures are my favorite dishes ever, from my current favorite blogger, which delightful blogger seems to have more dishes than anyone I have ever known. I am very good at sentence construction, you may notice.

Links:

http://onceinabluemooniris.blogspot.com/

http://food-with-style.blogspot.com/

>The new picture

>Is not mine. It’s from Cute Overload. But it is just too cute not to use for a bit. It makes me smile. I need smiling today.

>Struggling

>Went to look for some clip art for this post, and instead found several articles on coping with chronic illness. I’m not coping very well recently. But the articles made me feel a bit better. I realize I am struggling again with the knowledge that I will never again be the person I was. Read the decorating magazine, the cooking magazine, the having a nice life magazine, thinking I am that person, or will be that person. You know, the person who decorates their home, who cooks more than the easiest basic food, who does all the little things that make for a comfortable life. I’m not going to be her ever again. I went through this once before (probably more than once) but I haven’t ever really come to terms. I still have in the back of my mind that I can cook that, make that, decorate that, whatever. In my mind I still am that person. In reality I am not. It is hard. It is hard when your life diminishes in scope. When ‘I can’t’ seems to be the rule of the day more often than not. No matter how much I gear myself up mentally, the reality of my physical limitations is always there. I want to do it, I believe I can do it, but I can’t do it.

Today I was going to lunch with a friend. She was to call me this morning to set the time. I completely forgot to turn on the ringer in the bedroom phone. I had a bad night sleep-wise and am still having a lot of pain, so I probably would have had to pass anyway, but I felt like such a loser when I woke up and realized that it was way past the time when she called. I called and apologized. For the umpteenth time. How hard is it to be the friend of someone who is always letting you down, whether it’s within their control or not. My friend understands that I am ill, and does not ever make me feel guilty, but it doesn’t stop me from feeling terrible about always being the person who can’t. Who messes up the plans. Who spoils the fun for someone else. I don’t want to be that person. I don’t like that person. I want to be me again, I want my life back, and it is never going to happen. That makes me very, very sad. I usually am much better at dealing, but sometimes…………it crushes me. I look at the ruin of my body, the messiness that is my apartment, the food that I buy and then can’t prepare, all the gifts that illness has given me. And I am crushed, devastated, miserable, sad. It’s been eleven years since I had to stop working. You’d think I’d adjust to the new me. If only. I just realized…..I am still in mourning for myself. Hmmmmm.