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About excentric

I love sci-fi, music, reading, gardening. I am ill, but I am not my illness. Life is good. BTW, have I mentioned that I am a fan girl. Because I Am A FanGirl. Torchwood!

>Equality and Gay Rights

>
Sometimes, I get so disgusted with the attitudes of some people who claim to represent my country that I just want to spit. Then I come across something like this, something that makes me feel proud again:

http://www.boingboing.net/2009/10/20/86-year-old-wwii-vet.html

>Invisibility

>A comment from this excellent post on invisibility:

http://disabledfeminists.com/2009/10/20/what-can-i-do/#comment-537

“I was so grateful when I got my cane, because it gave me an excuse to ask for seats on the bus, or first dibs on the elevator. (Though, my school keeps its elevators accessible by making sure they’re slow, small, smell of pee, and placed where no one not following the tiny wheelchair signs will find them.) I also found that my anxiety had a lot to do about it, since I have social anxiety–on days when I had more mental spoons, I had the resources to just stand still on the escalator and put up with everyone else’s angry glares. When I didn’t have the spoons I wanted to apologize for sharing anybody’s air, and was willing to walk and take the stairs the long way round, just so I didn’t “inconvenience” anyone.”

I like the idea of ‘mental spoons’, since I also have social anxiety. Some days I am up for going across the street to the convenience store by myself, and some days I cannot muster the courage. Thinking of it in the ‘spoons’ metaphor I think will help me come to terms better each time this comes up.

>Some Things to Ponder

>Women in America are not doing very well, but still I think we are doing better than most of the women in the world. But this is America, I expect more. Read the report:

http://www.huffingtonpost.com/jesse-kornbluth/maria-shrivers-report-on_b_325531.html

Here’s a good video about the state of the news industry today:

http://www.huffingtonpost.com/lee-camp/moment-of-clarity—the-d_b_325470.html

>And I Am……..

>

Your results:You are
Deanna Troi

Deanna Troi


80%

Jean-Luc Picard


55%

Geordi LaForge


55%

Will Riker


55%

An Expendable Character (Redshirt)


55%

Uhura


50%

Beverly Crusher


45%

Worf


45%

James T. Kirk (Captain)


35%

Chekov


35%

Spock


29%

Data


27%

Mr. Sulu


25%

Mr. Scott


15%

Leonard McCoy (Bones)


10%

You are a caring and loving individual.
You understand people’s emotions and
you are able to comfort and counsel them.


Click here to take the Star Trek Personality Test

>Fixed the Connection Problem

>Found the answer here:

http://social.answers.microsoft.com/Forums/en-US/

It was easy. In IE,go to Tools, Internet Options, Advanced, Reset IE Settings, OK, Restart IE. Done.

Relief.

Oh, and the fan-fic made me feel much better. *smile*

>Random Thoughts

>I don’t. So I am having random thoughts about finding a baseball bat and doing some damage to the ole pc. Well, maybe not, but why doesn’t the darn thing just work like it’s supposed to?

The latest update screwed things up. After the reboot, after everything loaded and worked for about a minute…….total freeze-up. Hard shutdown, rinse, repeat. Many times. Safe mode? HAH! Useless to me. Finally got it to do a system restore and no more freeze-ups, even after it updated and rebooted again. BUT, don’t you just love But? I cannnot download anything, and while IE and Safari load, they will not connect to anything. (One more reason I love, love, love my Firefox. It works just fine.) I just keep getting errors. Googled, Windows-Helped, did everything I can think of. It can’t even do a diagnostic. I get an error message…”We’re sorry. Something is not working and we won’t fix it or even tell you what it is so YOU can fix it.’-” Helpful, Bill. Really helpful.

Okay, now that I’ve randomly pissed myself off again, I think I’ll go read some Torchwood fan fiction. That I CAN do.

>NCIS

>Gibbs: Are you superstitious?

Vance: I’m a little stitious.

My new favorite thing.

It’s almost as good as this:

Doctor Who: It’s a wibbly-wobbly, timey-wimey sort of thing.

>Nielsen

>It seems I am going to be a Neilsen household for a week in November. Fun. I get to comment as well as record which shows I watch and boy am I gonna tell them to quit with the pop-ups and the huge logos when I’m trying to watch a show. Also, I would rather have longer but fewer commercial breaks. Watching some shows is like reading a chapter of a really good mystery and then having to read two chapters of Herbert Hoover’s biography before you can move on to the next chapter. Think they’ll listen? Yeah, me neither.

Still having pretty good days. Don’t know why, but I’m liking it. I even had my homemaker buy some winter squash and cabbage, which I am planning but not counting on having enough energy to prepare. I want to make stuffed cabbage as soon as ground turkey goes on sale, and I love winter squash. There is so much you can do with it. Cutting it is hard, though, so I have to be having a really good day, or microwave it a bit first, which I’ve never actually tried.

My homemaker is really nice. She’s fun to spend time with. She is young, with young children, and it is amazing how uninformed she is about things. She had no idea diet soda is bad for you, why you should never eat ground beef, what an acorn squash was. And that’s only the food-related things. I really like her. She asks a lot of questions and really wants to know things. Did I mention she’s fun? She is. *smile*

It’s getting colder by the day. The Neilsen guy was very friendly on the phone this morning. He said it was 90 in Florida, where he lives, and has been every day for awhile, and he is seriously considering moving back to Buffalo, NY, where he’s from. I’ve been to Buffalo, in the winter. Brrrr! I told him Massachusetts is very nice. LOL He said it didn’t used to be so hot all the time in Florida, you could have the windows open and fresh air, but now it’s a/c all the time. Unless there’s an ice age, I am never going to Florida. So!

Oh, if you want to know why you should never eat ground beef, here’s the link:

http://www.nytimes.com/2009/10/04/health/04meat.html

>It’s Been a Good Week

>I actually cooked on Wednesday and Thursday, and Wednesday I had enough energy left to wash up the dishes afterwards. I’ve also been tidying up some here and there. Finally got the kitchen counter cleared of the big tray with meds and vitamins, a couple of vases, and some other stuff that was taking up room. Table is still a disaster, but I am sorting some papers on it, so too bad.

It’s about 3am and it’s gorgeous. Warm with a soft rain falling. My kind of night. I’m up way too late again, but that seems to be the case all the time lately. My natural sleep cycle seems to be several hours later than normal. Can’t blame it on the fibro, I’ve always been that way. I am not a morning person.

Been reading some Torchwood fan-fiction. The only other ff I’ve read is some Firefly. There are some good writers out there.

I saw that Pres Obama got the Nobel Peace Prize. Like everyone else, even though I’m a fan of his, I had to ask ‘huh???’. But I guess they gave it because the tone of this administration is more about finding ways to solve problems, rather than ‘let’s just bomb the hell out of everybody’. I wish people would give him a chance to do his work, instead of just being critical and questioning everything. Where were all the naysayers and criticizers when we were being conned into going to war?
God, I hate politics. Or maybe just politicians. And right-wing nuts who spend their time fomenting hatred and unrest. Aren’t those supposed to be wrong? But what do I know? I prefer to just sit back and watch Craig Ferguson, who is in my opinion the funniest man on the planet. And hooray for Al Franken, too. A smart man on the correct side of the divide that is so relentlessly spread by the elephant party and their minions. /rant

>What Would You Do?

>The London Eye

A post from http://www.fightingfatigue.org/?p=7801 with a video of answers to that question. If you were completely well, what would you do? Needs thinking on.
I would get my apartment organized, decluttered, clean. I would get a dog. I would volunteer for things I feel passionate about. I would buy a car, renew my license, and go places again. I would visit friends without them having to come and get me and bring me home again. I would walk everywhere possible. I like walking, I just can’t anymore. Oh, the possibilities! I couldn’t go back to my old job, it’s been eleven years. I’d definitely have more fun. I’d love to go check out The Providence Zen Center. I only live a few miles away, and I’ve never been. I’d take a cruise. I’d go to Europe. I’d go to Cardiff, to see where Torchwood is set. Of course, some of these would depend on me winning the lottery first, or somehow falling into money. But most of all, I wouldn’t just sit here. It would be good. So, readers. What would YOU do?

>Lovely Day

>I got some tidying up done, and my friend Tess brought some groceries I had asked her to get for me. Then we played games on here for a bit. Fun. We always get hysterical with laughter when we play pc games. Especially Big Kahuna, the word game. It’s my fav.

Wondering what my life would be like if I felt even this good on a daily basis. I still tire easily, and have some pain, but I am pretty functional. I could actually cook, and even go out to the library or something. Do more decluttering around here, too. It’s amazing how backed up everything gets when you are not well. If you have family, they can pitch in with the tidying up and keeping things running well, but when it’s just you and the cat, dishes pile up, mail piles up (got my mail, finally), everything gets messy. Then your feeling better time has to be spent clearing up all the things you couldn’t do because you were feeling crappy. Feeling good times should be reserved for fun. Fun is very, very important in life. Even when you feel crappy, fun makes you feel that little bit better. I read fun blogs like the LOL stuff and Cute Overload because they make me smile, and quite often make me laugh out loud.

I wonder if anyone else out there is dealing with chronic illness on your own, and how you manage life. I like living alone, and not being responsible for anyone but myself and the cat, but sometimes it would be so nice to have someone who would cook a meal, or clean up the kitchen, or even make a cup of tea for me. What do you think, readers?

>Much Better

>
I am. Much better today. Slept well, feel pretty good. It’s a gorgeous fall day, too. Sunshine, breezy, comfortable. I have showered, but I need to get dressed so I can go down and get my mail. Last time I got it was last Monday, over a week ago. I’m sure the mailman is not happy with me.

I found this program on tv the other day about a food challenge in Canada. It was to only eat items produced within one hundred miles of where you live, for one hundred days. Not so simple as you might think. No sugar or coffee or salt or pepper or any spices. A long list of things we take for granted. It really got me thinking about how we live. My first thought was what if it was winter? I live in New England, and there isn’t a lot in season in winter. You’d have to live more like our ancestors, learning how to preserve food. How would you do that? Canning, root cellars. No brining, because no salt. I think this would be really hard for anyone, but for someone with a chronic illness, the work involved would make it impossible. How fortunate we are to live in a time where food is easily available in pretty much ready-to-eat forms year round. I could not survive otherwise, since I live by myself and cannot afford a private chef.

That’s something I’ve learned since becoming ill. Not to take so much for granted, because I can’t. You have to be healthy to grow your own food, prepare your own food, raise your own animals, all the things people had to do not that long ago. Illness makes you count your blessings. I know some people spend their time bemoaning the fact that they can’t be their pre-illness selves, and trying to find something to fix them. I do that, too, sometimes. But I prefer to learn the lessons of illness. Appreciating what I can do, what is available to help me survive with illness, friends who are willing to help out with the really hard stuff. I think I have a wonderful life, even though it isn’t the life I thought it would be, or the life I used to have. It is still a good life, with friends and fun and lots to be grateful for. Like Jack and Ianto. *smile*

>I Seem to Be Sick

>
I never get sick, but last Monday a friend came over and she was coming down with a cold and I must have gotten it. I don’t have cold symptoms, though. I just feel worse than normal. Does a cold or similar illness manifest as a fibro flare instead of the actual cold symptoms? I haven’t had a fever, although I did have a brief ‘sweat’ thing yesterday, for no reason I could see. I’ve been spending most of my time on the couch or sitting here. I’m thinking maybe I DO get sick, but it causes increased fibro symptoms in lieu of what ‘normal’ people get when they are sick. I am puzzled and confused. Maybe what I think are flares are really that I’ve caught something and don’t know it. Or maybe this doesn’t make any sense at all and I should just go to bed. I love this snap of Ianto, btw. “He always cheats.” I snagged it off a fanvid.

>Hmmmm

>Too late. Someone twittered the crazy post. I’m going to put it back, I guess. As soon as I figure out how. Just remember, much better now. Thanks. *smile*

Well, I would have put it back, but I saved it on Evernote, and Evernote has let me down. It’s not there. I was pretty much just feeling really down, and relating it to my obsession with Torchwood. Depression grabs me sometimes, but after a few days, it lets go again. Torchwood made me sad because I was relating to Ianto and I felt he was never really sure he was loved or that he mattered, and I’ve had that in my life. Then I described my feelings about my life since my husband left, even before I got sick. It’s like I’ve fallen through the Rift, and I’m drifting around in this limbo without knowing where I am, where I’ve been, where I’m going, how to get home. But my home, and the life that I had then, no longer exist, so there’s nothing to get back to. Like this is not my real life, and I am just in that limbo waiting. For what, I don’t know. For my life to somehow come back. I feel like nothing I say or think or feel or do, or how I feel with being ill, matters. Nothing has any meaning because I have fallen through the Rift and this is not my life. It’s not as crazy-sounding as it was when I originally posted it, cause I was feeling really, really sad and it definitely came through in the post. I miss Ianto, even though he was never real. Have I mentioned that I’m crazy? *smile*

Gee, people, if you’re going to twitter me, couldn’t you leave a little comment here, as well. Did you twitter because I was fascinating? Because I sound like an idiot? Because I talk about Torchwood? I’d like to know. Sometimes I think I might as well write on iDaily Diary on my laptop, which isn’t connected to the internet. Complain, complain, complain. That’s all I seem to be doing. But I really am better. I’d just really like to hear from someone out there. Oh, well.

>Russia

>I had a visitor from Russia. How cool is that? Wish they had left a comment, but I don’t read or speak Russian, so unless they knew English, it wouldn’t matter anyway. I wonder what life is like in Russia, how people there manage with chronic illness, what their health-care system is like, what they eat for breakfast, do they have the same drek on tv that we do. I can think of a jillion questions. Or a lot, anyway.

Had a pretty good day after a so-so weekend of poor sleep and just vegging. Went out with a friend and did a little shopping, then watched some Torchwood fanvids and played a game on here. It was a gorgeous day which changed to a rainy evening. I like rain. There’s just something so….wet…..about it. LOL Really, it’s just a kind of comforting bit of weather, maybe because it was so dry when I was growing up in Colorado. It’s late, and I’m off to bed. Homemaker tomorrow. Have to be up on time.

>About This Blog

>I love my blog, I really do. It’s cute, and it’s changeable, and I can add lots of extras. But the links aren’t clickable, sometimes I can’t reply to comments, and I hardly get any comments anyway. Whether that’s because I am not a great blogger or because it doesn’t let people comment, I don’t know. I am again seriously considering moving it, but if anyone reads this who ISN’T one of my children, I’d appreciate a comment. Or email me at excentric97 AT operamail.com. I really need to make the decision to move it or not, and could use your help, readers.

>Health Care Reform

>Yes I am a member of MoveOn. I am one of those left-wing liberals and proud of it. Here’s a link to an amusing video about health care reform.

http://pol.moveon.org/insurance_execs/?id=17286-2765580-nzTZYRx&t=2

>Flu Vaccination and Fibro/CFS

>Here’s a link to a post from a blog I read regularly. I never get a flu shot, and I had flu way back in the late 50’s-early 60’s and I read somewhere (this link?) that I may be immune because of it. I am careful with handwashing, etc., and would rather not expose myself to something that may cause serious consequences. Anyone remember the last swine flu vaccine debacle? How do you all feel about this? Here’s the link:

http://www.fightingfatigue.org/?p=7721