>Well, one strange thing, anyway. I think I mentioned my DD and her ‘light’ treatments. Well, Friday, she did one for me….long distance. Called to tell me. I hung up the phone and proceeded to become engrossed in reading something on here. Suddenly, I became self-aware again (i.e. NOT engrossed in what I was reading) and realized I felt better. Seriously. My shoulders and arms (and the rest of me, for that matter) are always tense. Now they were loose and floppy. And didn’t have that background always-present ache. So I called her to tell her, even though the fifteen minute treatment wasn’t done. I am truly amazed that I actually felt something, especially when I wasn’t thinking about it or waiting for something. My focus was totally on what I was reading. My DD says I put Scully to shame as a skeptic, which is true, but I’m telling you, something actually happened. My arms and shoulders felt loose and pain-free for several hours. Interesting, to say the least. I was seriously expecting to have to tell her nothing happened.
Saturday, Gertrude and I participated in Earth Hour for the second year in a row. We did the same thing as last year, played ‘bird’ with her feathers-on-a-stick toy. It was nice. I wonder how many people participate in this, and how much energy is actually saved. Every bit helps, I think.
It’s another rainy day here in New England. I am so glad I don’t have a home with a basement. There have been lots of problems with flooded cellars, among other things. According to the local station, this has been the wettest March on record.
I can hear Gertrude snoring in her spot under the end table. Cute kitty.
>I had three good days in a row, got tons done, then two not-so-great days, then another good day today. Went out with a friend to Lowe’s, and a local salvage? store, and Border’s for cappuccino. It was gorgeous outside. Not even jacket weather. I didn’t take all my vitamins today, or have my yogurt with protein powder, so it will be interesting to see how I am tomorrow. The not great days I had weren’t really due to the illness, so I still think the vitamins and powder are making a difference in how I feel. More energy, less pain. It’s a good thing.
Here’s another reason to love the internet. I’m just posting the addy instead of the vid, because there are some interesting-looking vids in the sidebar, as well.
> Yesterday, I woke up at 8am, after sleeping really well. I set up Workrave on the pc, and every 45 minutes I got up and did something around the house. Put away laundry, washed/rinsed some items in the tub, cleaned the frig, organized some in the kitchen…there was more, but I forget. Today I was up at 6am, after not sleeping well, but not a zombie per usual when I don’t get enough sleep. I cooked breakfast, cleaned and reorganized the freezer, did some more organizing in the kitchen, and it’s only 1pm. I’ll probably crash later. I am still pretty tired. but it’s the second good day in a row. Windows open both days, too, as spring certainly seems to have sprung. That’s not to say we couldn’t have a snowstorm next week, it is New England after all, but I will enjoy that as much as I’m enjoying the lovely weather today.
Planning to watch Desperate Housewives tonight. First time this season, but Barrowman is on, and I just want to check him out as NOT Captain Jack. I’m still angry about the wholesale destruction of Torchwood by that rat RTD, but it’s not Barrowman’s fault. I read that if the American Torchwood does get made, they are going to un-gay Captain Jack. God, we are a bunch of backward puritans in this country. (Please, God, don’t let me get religion.) I’m not going to watch it anyway. First, it’s Fox, and we know their track-record for sci-fi shows. Second, I have vowed NOT to watch anything RTD is associated with. My own person(al Proof-reading. It’s a good thing.)boycott. Silly, maybe. But it makes me feel better. Happy Spring, everybody!
Update. Friend came over and we went to the local plant nursery. I got a lemon verbena and a purple sage plant. Lemon verbena smells soooo nice. I used to grow it in my garden. I would have gotten more plants, but Gertrude would eat them, so no point. Gorgeous day out.
I like Gmail, Greader, Gcal, Picasa. Should I be worried? Seriously, I don’t think so.
On the illness front, things have been better. Having a constant headache, sleep is messed up again. Today I got up at 12:30 pm. Yesterday I got up at 9pm and the day before at 8pm. I don’t work nights. I don’t need to be awake all night and sleep all day, but my body just seems to work that way. I’m tireder in general all the time, and having more pain as well. I wish someone would come up with a way out of this mess that is fibro/cfs. It’s getting me down again.
>It’s been a week, and I’m still feeling tired and miserable. I am so over this. A positive thing though, is that I have spent the week just sleeping or vegging on the couch, only doing what I felt up to doing, which was mainly finding something to eat. The positive thing is that I realize how fortunate I am to be able to do this. My biggest responsibility is taking care of the cat. If the house is messy and there are no regular meals, no one cares but me. So I can indulge myself when I feel this bad. Lots of people still have family to take care of, jobs to go to if they are able, responsibilities to fulfill. If I’m going to feel this bad for this long, how would I manage? I have actually felt this bad and much worse for much longer sometimes, too. About three years ago, I think, I had a six week period where I could barely stay awake for two hours at a time. Sometimes I think how lovely it would be if I had somebody to take care of me. But I was always the caretaker, and now there’s no one around to take care of me. Besides, I’m probably not that easy to live with anyway. *grin*.
>We’ve had several days of gloriously beautiful warm and spring-ish weather. I of course have felt like crap for most of them. Have I done something to offend Mother Nature? Gee, I hope not. I can’t believe we change the clocks this weekend….so early? Why don’t they just leave it changed all year, or just leave time alone. Time change is much harder on people who are ill, especially the spring change. It must be like jet lag…it’s not as bad going east to west as it is west to east, or the other way around. I don’t fly, so I’m not sure which is the correct one. Anyway, I wish they’d just cut it out.
DD the eldest wants to give me a long-distance ‘light’ treatment in the next couple of days. She recently discovered that she seems to have some kind of ability to make someone’s pain better but isn’t sure how it works. Anyway, for my treatment, she will send vibes and I sit and see if I feel anything, seems to be the gist. Normally, I would laugh this off as that crazy stuff some people are into, but I had cranio-sacral therapy once, and it was interesting, to say the least. I had not heard of it before (kind of like I never heard of fibro til I was diagnosed with it) so I had no pre-conceived idea of what was supposed to happen. I was in for my regular physical therapy and the person said she was going to try this. She put one hand under my back, one above my stomach, neither hand touching me. I felt energy passing through me from one hand to the other. She did this a few minutes, then told me to gently sit up, which I did. It almost felt like I was out of body and had to sit til I merged with myself again. It was pleasant, not scary or painful or anything, but really strange. I never had the therapy again, and it had no lasting effect, but it was a kind of eye-opening experience. Things that sound stupid sometimes actually aren’t. I’m not the tarot-card, psychic-visiting, metaphysical type, but it does make you wonder. I’ll post what I get out of the ‘light’ treatment, if anything. I do try to be open-minded and not just dismiss things out of hand, so I’m willing to give it a try. Besides, it can’t hurt, right?
>Last week I was in a funk and completely unmotivated. Then Monday and Tuesday I was on a roll, following my plan successfully. Got up, had orange juice, ellipsed, breakfast, get ready for the day, make coffee and go outside for a bit. Actually, Monday, my friend came over and we went out, so that counted as my outside for the day. Tuesday, I even cooked dinner…a real dinner of fish topped with crumbs and mushrooms, and baked potato. Ran the dishwasher. So much energy. But at the same time, I was exhausted physically. Not sure how to explain how I can have enough energy to chop veg and cook and clean up and at the same time be physically exhausted, but that’s how it is sometimes. Exhaustion causes glitches and brain-fog. Turned on the wrong burner and didn’t realize until the tea kettle was out of water and turning black on the bottom. Flipped a knife onto the couch when I sat down to eat, poorly placed the laptop on the couch to make room on the tray for my dinner and the laptop slid onto the floor right on the side where the power cord connects. Oh, gee, I killed my laptop, after I just started using it again. This is that fibro-fog that causes you to put your glasses in the freezer and the milk in the cupboard. The brain just does not work. When this happens, rest is the only solution. Real rest, lying down with eyes closed. Or a real night’s sleep, the kind that is so rare with fibro/CFS.
So my plan lasted two days in a row. Almost a record for me. One day in a row is usual, but I have had maybe three at some point. By Wednesday, the exhaustion had caught up with me and I was totally useless…barely functional. The rest of the week I have been sleeping way more than usual, or being awake all night. I’d really love it if I could have some semblance of normalcy, normalcy being where I can follow my plan on a regular basis, sleep at night and be awake during the day. But it’s been eleven years since the illness really took hold, so I’m not hoping for normalcy to make a comeback any time soon. I’d really like to get outside every morning, in hope of setting my internal clock to a normal day/night configuration, but boy is that ever hard to accomplish. I’m so foggy in the morning, or whenever I wake up, that usually I get the coffee made and sit in front of the computer. both things that take minimal effort on my part. I’ve also had a headache for the past few days. Does all this count as whining, or just updating my situation? You decide, dear readers. LOL
On the other hand, spring is springing. It’s supposed to be in the fifties the next few days, and sunny. Sunny is good.
>Sort of. I seem to have misplaced the March calendar, but on the other hand, I changed the click-on picture for the Moonlit blog to Earth in Spring…less snow cover, in case you couldn’t tell the difference. HA! Found the calendar.
The vid below is by OK Go, a group with some really clever vids as well as good music. I think I posted their treadmill video earlier. I absolutely love Rube Goldberg contraptions and wish I was clever enough to think one up, but they have done it, so enjoy.