This Is All Kinds Of Wrong of the Day – The Daily What.
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Yes, it’s still morning, and I’m up. Woke up at 7:30 or so. It looks like spring outside. It’s January. This concerns me, although why is beyond me. I have a link a friend sent me about foods to monitor with fibro. The only one I’ve noticed any real connection to illness is artificial sweeteners, which made my pain levels skyrocket. My homemaker bought ice cream and I didn’t notice it wasn’t made with sugar, so as I ate through the carton (come on, you know what I mean) I was in more pain every day. No more ice cream, pain went back to usual levels. Definite correlation. I’d suggest keeping track of when you eat what, and be aware of any changes, which may sometimes take a few days to appear. Nothing is easy with illness, is it? I hate keeping track of things, although I’ve been tracking my first thing before I get up temp for a week or so. It is consistently in the 96 degree range, with only once being 97 something. The average over the week was 96.5. I take a thyroid med, but I’m wondering if I need a larger dose. Once I find a new doctor, I plan to have a discussion about this. My old doctor and I are having a parting of the ways, although he doesn’t know it yet. Anyway, here’s the link:

Bob Dole says that Bob Dole opposes Newt Gingrich for president,
according to Bob Dole: <-This sentence is the funny part.
I have not been critical of Newt Gingrich but it is now time to take a stand before it is too late. If Gingrich is the nominee it will have an adverse impact on Republican candidates running for county, state, and federal offices. Hardly anyone who served with Newt in Congress has endorsed him and that fact speaks for itself. He was a one-man-band who rarely took advice. It was his way or the highway.
While searching for a picture, I came across this:
I was. We were so poor when I was a kid, I remember one period where we had biscuits, plain biscuits, for all three meals of the day. We took them to school for lunch, even. So anyway, I’m posting this article I just found for those of you who grew up not necessarily rich, but you always knew your next meal was going to be an actual meal. I can attest to the fact that every word of this article is trufax.
This is very:
A blog I recently came across. Reblogging this because I love his response to his landlord. I wish I could express myself half as well as he does here.
Bill Mullins' Weblog - Tech Thoughts
I have the right – just as you have – to express my opinion on whatever pleases my fancy. By no means, is this right secured only in the First Amendment to the United States Constitution but, in Canada (where I live), the Canadian Charter of Rights and Freedoms recognizes my right to freedom of expression as a – fundamental freedom.
Not only is my right to express my views and opinions – freely and openly – clearly guaranteed – but, technology has empowered me with the means to disseminate those views and opinions, widely – should I choose to do so. And, I often do.
Readers here (for example), have come to rely on my frank assessment of not only software applications which I review – and, those assessments are not always complementary – but in recent days, my views on SOPA (non- supportive), Apple’s greed (
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It’s 3am, and I’m up. Not STILL up, just GOT up. Actually woke up around 2, after going to bed at 3pm yesterday, after being up all night, after getting up at 2pm the day before, after not getting to sleep til around 6am that morning. Screwed up sleep schedule, anyone?
So I have decided to give it another go, and made up a new schedule that I don’t have any chance of being able to stick to. Feeling pretty good right now, so am filled with the ‘Yes, I can’ attitude that goes away once the fatigue and/or pain kicks in, which it always does.
Wanted to post while I AM feeling hopeful, anyway. It’s a new day, or will be in a few hours, so a new start. In my head, at least. Life is an adventure, people. My goal is to enjoy the ride as much as I possibly can.

More than the other day, but still not much. Some of it is still hanging around at 2:30pm. More forecast for Saturday. Strange winter, I think, but I’m going to see if I can find out how unusual it is, if it is.
Went out yesterday, lunch with a friend and a bit of shopping, leftover homemade pizza for dinner. Almost gave in to that ‘I want a dog’ yearning, but cooler heads prevailed. Seriously, how would I manage a dog. I can barely manage me. Gertrude is so easy; clean the litter box, put out fresh food and water, and rub her tummy. How hard is that? Besides, she’d hate having another animal here. She’s afraid of everything as it is. I just feel like I need more in my life. A reason to go out. It wouldn’t surprise me if I gave in some day and found myself a dog owner, but I’m wondering if they can be litter box trained. LOL
Icon has nothing to do with this post, but I think it’s cute.
I cannot tell you how many times I’ve talked about something, or thought about something, only to have a related item suddenly appear in my Firefox browser. I do love the internet. Was going to look into the snow thing, and this was in my email:
I had a pingback from a blog I was unaware of, so checked it out, and here is someone who is worth a look:
Good morning, people. Well, it seems to have slid past noon, so good afternoon, people. It’s the day may sites are going dark to protest the SOPA internet censorship bill. I shouldn’t even be on, but am checking my email and wanted to say something, then I’m off the computer (NOOOOOOOOOOOOOOOO) til tomorrow. How will I survive? I live here. Anyway, if you live in the States and haven’t yet contacted your Congressmen and/or Senators, haven’t signed any petitions, now it the time to do it. Censorship is not a good thing. Seriously. Here’s an email I received today about it:

“Much of the internet is going dark tomorrow to protest an ill-conceived law that the US Congress is proposing in the name of stopping online piracy, but at great expense to free speech and the integrity of the internet. Given the huge sway the US has over the operation of the internet, many see it as the biggest threat to internet freedom ever.
That is why I’m on my way to DC right now to meet with a number of key Senators about the law, known as the PROTECT IP Act in the Senate and the Stop Online Piracy Act (SOPA) in the House. We are up against a dangerous piece of legislation that seriously threatens digital rights, innovation, and the integrity of the internet.
In my bag is an important document. It is a letter to the US Senate
which Access coordinated, bringing together dozens of human rights groups from around the world including Amnesty International, Human Rights Watch, and Reporters Without Borders, calling on them to “stand for human rights, defend the open internet, and reject the PROTECT IP Act.”
I’ll be delivering this letter to the Senate, which Washington insiders say will have a real impact in switching some Senators votes, but this fight is far from over. This legislation is coming up for a major vote in just seven days, and unless we act now, it might very possibly become law.
Tomorrow there will be a huge protest in New York City outside of the offices of Senators Schumer and Gillibrand, who are both co-sponsors of the PROTECT IP Act. If you’re in the City or anywhere near it, I urge you to join the Access team and countless others at this Emergency NY Tech Meetup. Look for the big banner with the Access logo and the names of all the signatories of the letter from the human rights community on it. Details can be found here: http://nytm.org/sos/
If you’re in the US, but not in NYC, there are protests happening tomorrow in San Francisco
, Seattle
, and many other places
. I urge you to attend if you’re in these cities! If you’re not, please contact your Senators while they’re home for the January recess.
This legislation will also seriously affect non-US websites and users as well. As we explain in the letter, this legislation, which targets foreign websites, would create a double jurisdiction problem, whereby non-U.S.-based sites must determine whether a site is legal in both the country it is operating in and the United States, or face losing access to payment providers, advertising, and links to their site. Moreover, this legislation would send an unequivocal message that censoring the web is not only acceptable, but encouraged.
If you’re not in the US, join sites like Reddit, BoingBoing, Tumblr, Wikipedia, CREDO, WordPress, and countless other sites, and of course Access, in blacking out your site. Or talk about it on Twitter, Facebook, G+, make sure your friends know that the internet is going on strike tomorrow.
The internet is a key enabler of human rights and innovation, and decisions over its governance should not be made hastily. With each passing day the claims for urgency for copyright legislation whither, from the demonstrably false data used to make economic arguments about losses and jobs,[1]
to the efficacy of DNS filtering,[2]
to the baseless claims that countries like Spain, Egypt, or Sweden have lost their film industries due to piracy.[3]
Nothing short of a global outcry is going to defeat this terrible legislation.
Cheers,
Jochai Ben-Avie
Access Policy Director”

Here’s where you can sign a petition:
Please do your part in keeping America free. Thanks. Jean

Gone already. Is this New England, or have the tectonic plates shifted and we are now somewhere farther South? It was beautiful as it fell, but gone, gone, gone.
I was right. I am better today. Somehow, writing/talking about how I’m feeling always helps. It’s a good thing.
Or Freezer? It was 8 degrees yesterday. I am wearing jeans, my regular white socks topped with my big fuzzy Santa socks, a tee shirt, a heavy pullover, and a light but warm pullover on top of that. And I’m still cold. I am darned if I’m going to turn the heat above 66, though. Sixty-six is balmy at this time of year, right? I would have the windows open if it was 66 degrees outside. So anyway, I have my electric fireplace going, and use my little portable heater/fan to keep my feet warm at my desk. I love winter. I want SNOW, dammit! SNOW, do you hear me?
On the illness front, being sick sucks, as you all know by now, I’m sure. My sleep schedule is so screwed up that I am asleep more than I’m awake, and I sleep mostly during the day, regardless of what I try to get to sleep at night. My body either thinks I’m still a kid, praying for dawn so I wouldn’t have to be afraid of my dad coming home drunk, or that I am still working nights, which I only did for a year about fifteen years ago. Come on body, get with the program. This is depressing me, I’ve realized. I am feeling once again that I have no control over my life at all. Can’t even sleep at night like a normal person. I’m just here in my little box, time and life passing me by, with no hope and no purpose. This really stinks.
I’ve thought back to other times I’ve felt like this, and told myself that it’s time to change things, but it never worked. The illness always wins. Always. I fight, and I fight, and I try to be normal, and I pretend to be normal, but it always is just the same old same old. My body’s illness runs my life. I’m out of ideas. I want to live, not just exist, and I cannot seem to manage that. So this is the whiny post for today, folks. I’ll be better, now that I’ve put it out there. Thanks for reading, if anyone is still reading. 🙂
UPDATE: And it’s snowing. Finally. 


Yes, it’s not quite 11am, and I am up and showered. Going to lunch with a friend, then to have bloodwork done to check those pesky potassium levels. It is a gorgeous sunny day, 19 degrees Fahrenheit. Nineteen degrees, and still no snow. This is not winter, it is a freezer. But after gray day after gray day, sunshine is lovely. I’ll be outside in it. I want to go outside every day, even for a few minutes, but it is so hard to motivate myself amidst the pain and the fatigue and the just plain why bother. I need some encouragement, dear readers. Help!!!

Today is the fifth anniversary of this blog. I started on Blogger.com, and moved to WordPress after having issue after issue with Blogger. When I started, I wasn’t sure if I had anything to say, but apparently I do. It’s been a difficult five years, but also happy and interesting, with lots of fun. I’ve gotten more and more discouraged and worried about the state of my country. Things are going downhill fast, and I see no way out of the mire that certain factions have gotten us into. We are losing more of what made us ‘land of the free’ every day, and not enough people seem to care. Giving up your freedom does not make you safer, it just makes you more vulnerable to those who would abuse their power over you. It’s scary.
But I am doing okay personally. Still sick, still isolated, still alone most of the time, but I count myself as happy and having a good life over all. I have good friends who care about me, great (if strange) children, who take after me as far as strangely peculiar goes. We all have our quirks, but that’s what makes us who we are. I like us just fine, just the way we are. I hope all of you out there can say the same about yourselves and your loved ones. I wish you all the best year yet, with lots of love, lots of laughter, and much happiness. Happy 2012.

AWOL from blogging, I know. I realized, a couple days before Christmas, that I was almost completely shut down. Repressing my feelings about Christmas. Having a hard time acknowledging no family, no friends, no chocolate croissant with morning coffee, no Yorkshire pud. No Christmas. A day like any other. I’ve gotten really good at repressing over the years. Mostly I know I am doing it on some level, but when it runs right smack dab into me, I’m always, “Oh, yeah. Doing that again.” I felt really bad at one point in my life. So bad that the only way I could think of to escape from the abject misery I was feeling was to die. I didn’t, I’m still here, and I’m happy for that, but I never want to feel like that again. So I don’t allow myself to feel. A lot. I don’t allow myself to think about certain things, remember certain things. I suppose this is bad for me. DD1 says it contributes to the fibro/cfs, but I’d still rather not ever feel that bad again.
I cooked. Yay, me. My friend Tess came over for a bit, and then I decided to make myself an actual dinner. Was tiring, and I got shaky, as I usually do when cooking, but it’s in the oven. Casserole. Cook once, eat for a few days. Yep.
It wasn’t a bad non-Christmas. I got a really cute Westie calendar and homemade carrot cake from Tess, a snowman pot with a Christmas cactus in it from my delightful homemaker Traci, and DD2 sent me these marvelous chocolate covered fruits. Oh, man, were they good. The lovely red box had apple slices, strawberries (including the biggest one I’ve ever seen), and chunks of banana, all nestled in stiff cupcake papers. All covered in hard chocolate that broke when you bit into it. Thick hard chocolate. Delicious fruit. Maybe I’ll order some for myself. I could eat that again. Just thinking about it makes me wish I had some right now!
Still no snow. Since that one snow in October, I think we’ve had three or four flakes. Period. Easier for getting out and about, but I miss snow. I’ve also had the windows open off and on, all night two nights ago. It’s December. In New England. Wonder what the rest of winter is going to be like.
I am still walking without the cane. Carefully, but still… Hoping to do whatever it takes to keep from needing the surgery. Looked up exercises, etc. and am doing a few, very gently. We’ll see.
I hope everyone out there is having a good winter/summer, depending on your side of the equator. I still can’t get my mind around Christmas in the summertime. I’m going to attempt to be more regular with blogging, but some feedback would be nice. I know you’re out there, people.
Dear Santa. Snow please? Thank you.
Interesting read about the hypocrisy inherent in the ‘family values’ segment of the ‘my way or the highway’ hypocrites.
I guess I can find some. We’re not all greedy selfish cretins, although it certainly seems that way some days. Think I’ve been feeling kind of down about it, and I do NOT watch any news programs/stations. Imagine how those who do must be feeling. So here’s a little article from the Providence Journal, just to give us a glimmer of hope. A glimmer is better than none at all.