>Thoughts for the Day

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My day, that is. I woke up angry. Yes, I know it’s after 3pm, but I woke up at 3pm because my sleep schedule is so messed up. I’m not sure I have enough energy anymore to spend some of it being angry. But believe me, I really am angry. I am angry at the religious right tea part morons who voted in people, some of whom have more money than god, and who don’t want the taxes on all that money raised, because OMG how will they manage? But who see no problem with cutting off supplemental heating assistance, medical care, rental assistance, and every other service people like me need to survive. People who aren’t richer than god, who weren’t born into wealth, who didn’t acquire their wealth by stepping on and cheating everyone they possibly could. I worked my entire life. Not always in paid jobs, but I worked. I didn’t loll around eating bon-bons, and living off my parents money. I struggled for everything I’ve ever had, and I’ve never had very much. Actually, I’ve never needed or wanted very much, but that’s not the point.

That wonderful president Ronald Reagan (does anyone remember the ‘trickle down’ theory?), who was so great we should put his face on Mount Rushmore according to some, was the one who pushed deregulation, which meant companies buying up other companies until we are reaching the point where a few companies have power over everything we buy, use, need. Monopolies are never a good idea, people. Freedom of choice does not exist under monopoly systems. He also started the whole thing with ‘outpatient’ care for the mentally ill, and emptied out the hospitals where they were cared for. Homeless problem, anyone? Now, they have nowhere to go, but good grief, we don’t want to actually see them, so what to do?

We pay sports and tv and movie people obscene amounts of money, but we resent every dollar those who teach our children receive. We grab for more and more profit, and less and less quality. Virtually everything we buy is made in China. So what are the people who used to produce those things in our own country doing? Well…they are having their homes foreclosed, their medical care taken away, their ability to provide for their families destroyed. But somebody, you know…somebody who ‘matters’, and for somebody who ‘matters’ read ‘somebody who already has enough money for several lifetimes’, because they are the ‘elite’ and better than the rest of us, anyway, those somebodys are getting even richer on the backs of those who used to have jobs that made the products right here in the USA.

I do not understand what has gone wrong. How so many people can be so deluded by greed and avarice and discrimination and homophobia into turning against their own best interests. I do, however, understand those who are manipulating them so adroitly. Oh, yeah. I really, really do.

See, it takes a lot of energy to be this angry. I just don’t have that many spoons on any given day anymore. Anyone with chronic illness should know what ‘spoons’ refers to, but in case you don’t, here’s the link:

http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory-written-by-christine-miserandino/

Thought number two:
I have a memory foam mattress. It seems to make things worse, and I’m wondering if anyone else has one and what their take on it is.

Thought number three: I don’t know what to do about the sleep thing. I really only have to be up and presentable by a specific time on one day a week. I don’t know if I should keep trying to get my sleep schedule normalized (I’ve been trying my entire life, but it’s much harder since I’ve been ill. I am just not a morning person and I never have been.) or just go with the flow except for that one day I can’t. I’ve tried the whole ‘get up at the same time everyday regardless’, but I can’t stay awake or if I can, I am virtually non-functional, i.e. making coffee with no water in the machine, or no coffee, or no carafe to catch it as it comes pouring out. Putting the kettle on to make instant oatmeal, but not actually putting any oatmeal in the bowl, and forgetting the kettle til the bottom turns black. Had to buy a whistling tea-kettle after that. And that’s just breakfast. How do I cope with this? How do I manage? It’s not getting better. Let’s face it. I’m getting older and while I blame all my problems on illness, I’m sure just the natural progression of years comes into play. I am not coping well. Not even a little bit, and I don’t know what to do. Everything thing I’ve tried throughout the almost fourteen years I’ve been ill has failed in the end. One good day in a row. Believe me, it can get you down.

I don’t want sympathy, or pity. I want somebody to fix this, damnit! Fix me. I’m tired of being the needy one. The incapable one. The alone 99 per cent of the time one. I used to have a life. I want it back, please. I want to have a garden again, and be able to garden in it. I want to cook. Okay, I don’t want to clean the toilet, but that’s a whole ‘nother issue. LOL Guess I’m done with The Rant For Today. I’m sure there will be more tomorrow.
Thank you for reading.

>I Like This

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It’s short. I just read the transcript, didn’t watch the vid. He says things I agree with. It’s a good thing. http://techpp.com/2011/02/11/awe-inspiring-speech-by-steve-jobs-at-stanford-in-2005/

On the illness front, I have been wallowing. Too much pain for too long. I started to feel like I’d just quit. Just given up and stopped caring. Can’t sleep, can’t stay awake, can’t do what I need to do. let alone what I want. So let’s just lay on the couch and play on the laptop. I have a lot of things to read on here.

Then last night, that little spark flared up and determination to overcome filled me up. I will take the knockout pill, I will get up at a decent hour, I will not sit on the couch with the cat and the laptop all day. I will prevail. Yes.

So I took the pill, went to bed between one and two am, and woke up at six. Wide awake. Got up. Pain, pain, pain and more pain. So I’ve spent the day on the couch with the cat and the laptop. I just can’t win.

>Well, Darn

>It’s been a tough week. I think I said that already. But today, for the first time ever, I asked my homemaker to load the dishwasher and put the laundry on the drying rack. It feels like such a defeat. Like I am such a loser. One more step down the road to being a useless blob on the couch. One more ‘I can’t do that’ moment. It makes me feel very sad.

After my husband left, I would go to the doctor whenever I thought I was sick, because I had to take care of myself. If I lost my independence, I’d be screwed. Then I got really sick and lost my independence. No more job, no more life. Just getting through the pain each day, waiting for a day I had a bit of energy, just waiting. Like living in limbo.

I was talking to a friend about organizing my kitchen. Getting rid of things I no longer use. But if I get rid of some things, it means I’ll never do the job they are meant for again. I will have to acknowledge that that part of my life is gone and I will never get it back.

Okay, I’ve been up all night and I’m tired, and that makes everything seem worse than it is. Sometimes it’s hard to tell the difference between ‘tired’ and ‘depressed’. Today, I think I’m both. I feel beaten. I don’t like it.

>Hmmm

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Tried to fix the weird video-ness in the last post, but no luck. Anyone have a solution? The embed code is different from YouTube’s, and when I tried to make it more like YouTube’s, it wouldn’t work at all.

Having a better day. Not nearly as much pain as this entire past week. Yay. So what did I do instead of what I should do? Of course. I fixed my desktop, which has not been able to connect since October. I downloaded every driver on the Dell site that applied, and installed them one at a time. After a while, I looked down at the task bar and saw the infamous yellow ‘you have ten bazillion updates’ icon. Well, there were only 76, and then there were several (a lot) more after that. But she’s working fine now. I have been setting up my Firefox the way I like it, and signing in to things here and there. I get to be online while sitting in my swivel chair. Yay, although being online while curled up on the couch with the cat and my blankie is pretty great too. LOL It feels good to feel good. I’m telling you, people. Not pain-free, but good.

>Tough Week

>I’ve had one. Lots of pain, screwed up sleep again, getting nothing done. Even my fingers hurt yesterday. I keep hoping to get some semblance of a routine, but it just is not possible. I don’t know why I torture myself over the sleep thing. I could just go with the flow and sleep when I’m sleepy and be awake when I’m not, but then I’m usually awake at night and asleep during the day and I want it to be the other way around. Why can’t I make that happen? I get really frustrated with myself over it. I wish I could figure out what to do, but so far nothing I’ve tried has worked. I can keep a good routine going for one day in a row. That’s it.

Night before last, I could not sleep, then I slept all day. Then I was up for a couple of hours and back to sleep for three or four hours. Awake four hours, back to sleep for twelve hours. So now I am wide awake and it’s 1am. Which means I’ll need to sleep tomorrow during the day. Sometimes I just want to scream.

>Pain

>Today is an all pain, all over, kind of day. Just been playing on computer, trying not to move more than absolutely necessary, cause it HURTS. Every move. My fingers even hurt. Hope a good night’s sleep will make tomorrow a better day.

>Republicans Want To Redefine Rape

>If you are a woman, or a man with a mother, sister, wife, daughter, you need to take a stand on this.

http://pol.moveon.org/smithbill/?id=25965-18045030-Ys__lMx&t=2

>Home

>Went to my friends house for the weekend. Had a great time. Fireplace, ocean, wine, chat. Lovely relaxing weekend. Now I’m back. I’m depressed. I’d rather be there. Oh, well.

>Discussion With Myself

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Since nobody ever comments. Duh! Anyway….invited to my friend’s for the weekend. Great. Love my friends, love to hang out with them, steak on the grill, new house, snow. It’s all good. So why does it cause anxiety? Getting up, getting presentable, remembering what to take, what about the cat, etc.

But I WANT to go. I want to have fun and get away from this box of a flat for a bit. So today, I wake up with full body pain. The issue that is open for discussion is this:

Is the pain my body’s way of saying, “Oh, fun. Can’t have that, now can we?” or is it my psyche’s way of saying, “Oh, anxiety. Too much stress and anxiety is bad. Let’s have some pain so we don’t have to do the scary thing.”

Read a book about the whole ‘pain is your body’s way of protecting you from anxiety and stress’. But is it? I don’t know. What do you do when these issues come up, ‘want to do something, causes stress and anxiety though, so….’

I’d really love if someone with experience with this would comment. Please?

UPDATE: Third option. Coincidence?

>Inhumane Treatment of WikiLeaks Soldier Bradley Manning | Human Rights Now – Amnesty International USA Blog

>Two things that depress and upset me,

Inhumane Treatment of WikiLeaks Soldier Bradley Manning | Human Rights Now – Amnesty International USA Blog

http://takeaction.amnestyusa.org/siteapps/advocacy/ActionCenter.aspx?c=jhKPIXPCIoE&b=6519797

>This Matters

>Corporations are not people and should not be given the same rights as individuals. Giving them the legal ability to buy elections is one of the worst decisions ever made by the Supreme Court. Sign the petition to repeal it.

http://pol.moveon.org/constitutionalamendment/?id=25870-18045030-2FAR1Vx&t=2

>Agree or Disagree?

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Your Blog Should Be Yellow


You’re a cheerful, upbeat blogger who tends to make everyone laugh.

You are a great storyteller, and the first to post the latest funny link.

You’re also friendly and welcoming to everyone who comments on your blog.

I had a good day today. Did some work in the bedroom, remade the bed, made the lemon curd with the Meyer lemons. Not as much pain, and still no brain fog or just feeling crappy in general. Yesterday was all pain, all the time, so I enjoyed today.

It snowed again, and there are icicles hanging off the big light across the street. Don’t recall seeing that before.

It’s really great to be feeling so much better. I feel like I want to do things. I want to cook. I want to organize, I want to make something crafty. Usually, I’m just trying to get through the day without messing something up. My brain is working, people. It’s a good thing.

>America

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http://www.dailykos.com/storyonly/2011/1/18/937060/-Truth-in-Volume

It’s sad, really. I don’t know what to do about it. Do you?