Or not. I am having lots and lots of pain and am barely hobbling around. I’m down to one homemaker and she’s almost five months pregnant and every week comes with a look on her face that says “Oh, I am so miserable, pity me and don’t ask me to do any work please.” Yeah, no. If you can’t do the work, quit the job. Please. Something is wrong in my head, and even though I had a cat scan two years ago that just said I have thickened sinuses, that is not a fix. I can’t think straight or concentrate half the time. It’s like when my doctor sent me for xrays to see if I had pneumonia and a fractured bone in my foot. No to both. Yeah, but I still can’t breath and my foot is still swollen and painful. Caller had to hang up and call the doctor who had gone home to ask what to do. Gave me a new inhaler, and said ‘wear good shoes’. All is well now, except I am still not breathing well and my foot is still swollen and painful two month later. Medicine in the US is in serious need of doing better. And now I came across a very good blog post about fibro and ‘cure’ books. What she says has been pretty much my experience with those books, too. They usually seem to wind up wanting you to buy some expensive ‘fix’ that they are pushing, and truthfully, nothing works. Expensive or not, prescribed or not, nothing works. Sometimes you’re better, sometimes you’re worse, and all those people who brag about the marathons they can run and the difficult jobs they hold down in spite of having fibro can just go…..whatever. Yep, grumpy Jean is grumpy and in pain and I need to do things and call Verizon about the router I never got and the bill that is thirty dollars more than I was told it would be and and and and my brain is just not cooperating at all. Some days, I just cannot be upbeat and positive and find the bright side, and this is one of those days. The realities of living with a chronic, disabling illness. The blog post:
Edit: debilitating, I meant debilitating not disabling. Did I mention my brain is not working?


Changed my plan. Combined phone and internet, where as before they were two separate accounts because I had Lifeline for the phone, which is a discount program for us po’ folk. Fine. Phone will be off Tuesday and part of Wednesday while they do the changeover. It’s Thursday, and phone is still not on. Try to use FIOS app on cell phone to figure it out, yeah, no. Called with cell phone. Spent eons getting to and the talking to the correct human person. My pin didn’t work so two people gave me two temp pins, one after the other. Turns out they cancelled my old phone number and gave me a new one. Well,change it back. Sure, twenty-two dollars. NOOOOOOO. You change it without asking or telling me, I am not paying for your screw-up. Okay, waiving charges. How on earth was I supposed to know my phone or pin don’t work because it’s not my phone or pin number anymore? Seriously, Verizon? Seriously? Unhappy Jean is unhappy.




I have been still struggling with getting back to some semblance of functionality since I was sick, but it is just not happening, I give up. I am buying frozen meals, because cooking is just not going to happen. Did you know there are some really good frozen meals that aren’t those dreck Lean Cuisine type crap, but real food? Trader Joe’s has some really good stuff, and now Shaw’s does, too.
I am really frustrated with being exhausted all of the time. I know it’s part of my illness, but it’s not always this bad. I cannot seem to come back from being sick. I am taking B-vits and D3 and eating protein and drinking a lot of water and nothing is helping. I slept pretty much all day Thursday and all night Thursday night. Better yesterday, not so good today. At least the pain is not so bad. My first rheumatologist told me that if you have more pain, it’s fibromyalgia, if you have more exhaustion, it’s Chronic Fatigue Syndrome. It’s two sides of the same problem is what he said. I started with CFS, morphed into fibro, and have waffled back and forth over the twenty years. Right now I seem to be in the CFS phase.






that taught me some important lessons about life. Not to mention some hardships and challenges that have shaken and tried to break me, but the last 4 years have been the most relaxing, self-reflecting, sometimes rocky, life changing and possibly some of the most impactful years of my life (particularly the years since being diagnosed with Multiple Sclerosis). With each year that goes by since being on long term disability, I find that I am learning more and more about myself. And yes, sometimes it’s been hard both on me and on the people I love. But, here’s the thing, I am wiser today than I was 4 years ago…









