There is some bad stuff on Tumblr today. More black people being murdered by the police, more corporate wrong-doing going unpunished, a lot of really awful shit. How do I survive? It wears me down, all the unbelievably horrible stuff that is going on every day in my country. You know, the one I thought was completely different that it really is. How do you not get beaten down and just give up? How do you stop caring? I like Tumblr. I have a lot of fun and interesting reads on Tumblr. I learn a lot. I can’t just stick my head in the sand and pretend none of the bad stuff is happening. But how do I keep it from breaking me irrevocably? How?

Just wow.

OR: Things I’ve Learned From Eighteen Years of Having A Chronic, Debilitating Illness

You cannot rely on the Medical Community.  You cannot rely on doctors.  Doctors only know what the drug reps tell them. Ask your pharmacist, instead.  It’s their business to KNOW about meds. 

Doctors read studies and go from there, even when their own experience with patients tells them differently.  Just from my experience with Rheumatology and Prednisone, I can confidently say that the patient input is not needed, not wanted, not heard.  It’s my body, this is what happens when you insist I do that, but just go ahead and ignore me.  It’s fine. 

Also, I’m female, which makes the odds of being ignored jump exponentially.  Also choose a female practitoner, if possible.  This is just unconscionable.  How many people have suffered needlessly because of this one particular study?  You have to fight for yourself, and when the doctor is wrong or doesn’t listen, you need to be a pushy broad, because that’s the only thing that will give you a chance of being heard.

Not any more, I won’t.

Here’s the article:

Bad Science and Chronic Fatigue Syndrome