LOTS GOING ON

In a good way, really. First, here’s an article I just came across:

We Need To Talk about the “Disease Warrior” Model

Why can’t we just say ‘Living With’ rather than battling or whatever. I have never been comfortable with being referred to as battling or a warrior. I am living with a so-far incurable illness, more than one actually. I am getting through each day as best I can. That’s all.

I got a new phone. I know, I haven’t taken off that little sticker. It’s too small to see what it says, too. LOL My old one is needing to be charged more and more often and I saw one in Best Buy that I loved, and wound up getting it from Walmart. It is a Samsung. I have always had Moto, except for my first phone, which was a gift from my daughter. It was a Nokia flip phone that I absolutely adored. Star Trek anyone? It’s not the latest model, cause no way am I paying that much for a phone, but more expensive than any Moto I’ve ever bought. So far I love it.

I think I have made a new friend. I hired someone to help me declutter, and she has come a few times and is really nice and we just talk about things and have fun and she clearly wants to come back. I am kind of taken aback. I always think people are not going to like me, and if they do, they will soon change their minds. So much so that I used to find things wrong with people after a while, so that when they cut me out of their life, I could tell myself I didn’t really like them anyway. Yeah, I’ve had a lot of rejection. My fault, as I always manage to say or do the wrong thing without realizing it. Oh, well. Anyway, it’s nice to have a new friend.

I am firing my homemaker service. Well, my caseworker is. I have only had this agency a short time, and I don’t think any worker has come more than twice in a row. I usually get a new one every time. Not happy with the work, either, so am done with them. I have someone who will come once a week to vacuum and take out the trash as a favor, so until a new agency is found (virtually impossible now) I won’t drown in trash. Yay. This is NOT any homemaker I have ever had. LOL

What else? My organizer person completely redid my lower cupboards in less than an hour. Got rid of some things I am never going to need again, since I hardly cook now, and everything else is arranged so nothing is behind something else and I can see what’s there and easily access it. Really important when you are in pain. This is not my cupboard.

I had an amazingly good day Saturday which has not happened in quite some time, so I organized my messy big drawer in the kitchen, the window desk drawer, my coffee table tray where I keep everything I might need when I am in too much pain or too exhausted to get up and go find whatever. Pens, scissors, tissues, water bottle, etc. I have discovered that the bottles Kombucha comes in are excellent water bottles, as they are thick glass and do not break easily if Gertrude knocks one off the table. Inventoried and sorted my backup meds and made a list so I don’t buy something I already have. Pain meds, allergy pills, etc. Also sorted some paperwork and rearranged the table where I have the printer and my laptop. Organization is crucial when you are ill. Not having to search for things or move things makes all the difference. It was a very good day.

It’s been bright and sunny for a few days, too, which really helps a lot. Today of course is gray again. So over gray. In New Hampshire, February was gray month. It seemed like the sun did not shine for the entire month most years. It’s been like that this month here in Mass. I am only about 30 or 40 miles south but the curve of the earth at this latitude really impacts daylight. Amount and brightness. Interesting. Oh, looked it up. You can do that. It is 60 + miles in a straight line, 80+ driving miles. Did not think it was that far. you can see how the curve is above 40 degrees. Can’t figure out how to put the pictures side by side. Oh well.