Illness Ramble

Being frustrated with everything, I decided to look for other illness-related blogs.  Came across a few interesting ones.  Seems I’m not the only one frustrated with doctors and medicine.  Anyway, one person was talking about how meds work a bit, then don’t, and how reading about them, she found that they don’t know how certain meds even work.  Or why.  Got me thinking, and I replied this, which I thought I’d just put here as well.

no idea

“BTW, reading your About page, my first rheumatologist agreed with you that they are the same illness.  He said if you have more pain, they call it fibro, if you have more fatigue, they call it CFS.  Sometimes I think that after they’ve tested you for everything else and couldn’t find anything, which is what happened with me, they call it fibro/cfs instead of ‘we don’t have a clue what’s wrong with you, but if we give it a name we can prescribe meds.’  You know, the ones that don’t work, or work a month, as was said here.  🙂  They don’t know what’s wrong with you, they don’t know why the meds work when they randomly do, they don’t really know anything and we are just guinea pigs.   I take Prednisone, which I got on for a completely unrelated reason, and when the dose is right, I am 80% better.  They keep telling me Prednisone does not work for fibro.  Then why does it work?  Do I not have fibro after all?  Do you actually have a clue about anything related to this whatever it is illness?  Yes, I am currently very frustrated with my rheumatologist, who seems to have devolved into a ‘Do what I say, I don’t care how it affects you.  I am the doctor here, not you.’ mentality.”
you will listen

Going to call a new doctor today to see if she’s taking patients.  I just read, too, that you live longer if you have a female doctor, which my primary care is but not the rheumatologist.  Definitely time for a change.

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