Had my eyes checked today. Need new glasses. Surprise. Told my doctor about the ultrasounds for the temporal arteritis. This is the same doctor from whom I learned that I was being jerked around by my rheumatologist and that is why I have been in prednisone hell for over a decade. Anyway, told him I was put on high dose prednisone and then three weeks later had the ultrasound of my neck arteries to see if I have the temporal arteritis. NO! It has to be a week or less after starting prednisone, or the condition is masked and undetectable. BUT even more disturbing is that you don’t do ultrasounds for temporal arterits, it has to be biopsies. I had that when I first became ill in 1997, and it turned out I did not have it then, just the fibromyalgia which can also cause similar issues. Apparently fibro can present as a lot of different illnesses, none of which you may actually have. So I think this means I have to start over, but I’m thinking I may just see how it goes as I eep decreasing the prednisone, very, very slowly, which is how you are supposed to do it. I will be discussing this with my new rheumatologist, who I like and seems to be more up on things than the old one was. We’ll see how it goes.
This has nothing to do with anything, except I love it. Spring.
It just never ends. 😦
So true. Doctors used to at least seem to care about their patients. Now they are just money-making machines for the HMO’s, for which we cannot entirely blame the doctors.