Yes, I have totes lost my marbles. LOL Saw the rheumatologist yesterday, and yes I officially have Polymalgia Rheumatica, an inflammatory disease and am now on another course of high-dose prednisone. Prednisone is a very bad drug, but it is also a very good drug and I am hopeful that in a few days I will be a functioning human being again. I am also going to have biopsies to see if the problem that has been ongoing in my head for several years now is Temporal Arteritis. I had the tests way back when I first got sick, before they settled on fibromyalgia as a diagnosis, and I did not have TA then. But it is looking pretty likely now. My vision has been getting worse almost daily, and TA causes blindness if left untreated, so thank you very much for nothing, past doctors.

I cannot stress how important it is to find a good doctor. Or how hard. But after years of telling various doctors that ‘something is wrong in my head’, and being dismissed or given another pill, I finally have three doctors who actually care what is happening to me and are trying to do something about it. All are female by the way, but the worst doctor I have had in my entire life was also female, so that isn’t a good criteria to go by. But finally, I am feeling hopeful, and thinking of all the things I want to do and get done when I am a real human being again. For however long that lasts. BTW, looking for an image of a good doctor, I got an entire page of pictures of The Good Doctor, the tv show. Not the same thing, Duck Duck Go.

Also, I dumped Twitter. It was hard, but if I keep using it, that means I am supporting that disgusting excuse for a human being, Elon Musk, who supports that even more disgusting excuse for a human being, the Orange Disgrace, and if you don’t know who that is, where on earth have you been? It’s hard to follow your conscience, and in some countries doing that can mean prison or death, which makes it even more important to do it here in the US. Embrace the freedom we have to disagree, and to speak up. Those Fascists, and all the Republicans who either are fascists or support them, want us to live like those other countries. Want us to be jailed or murdered for speaking out. Want us to live like a third-world country under a fascist dictator. Why? What is wrong with us? Mass insanity caused by too much sugar in every single food we eat that isn’t a raw ingredient that we have cooked ourselves? (And that’s a whole nother issue, btw.) I don’t know, and I don’t know what to do about it, but it gets harder every day to see what is going on in this country, to take in that this is my fellow citizens doing these things, and supporting those who are doing these things, and it is very, very scary.

But, I am now going to get better, I think, so it’s all looking up, just a bit.

3 thoughts on “UPDATE, UPDATE. GET IT, GET IT.

    • Day 3 and I am already feeling considerably better. Could move much more easily when I first got up. The only thing about 30 mg Prednisone is it causes insomnia, meaning I am awake most of the night and sleep a few hours early in the day. But it’s worth it. 🙂 Thanks for your comments, btw. It’s nice to know someone is out there. 🙂

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.